Articles

Monday, February 20, 2012
News Article
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Monday, February 20, 2012
News Article

Nine-year-old Presli Collins had her first date on Saturday. Who was the lucky guy? Denver Broncos quarterback Tim Tebow. Presli, who has both Neurofibromatosis-1 (an inherited tumor disorder) and Chiari, and Tebow went to the Cartoon Network Hall of Game Awards in Los Angeles. READ FULL ARTICLE   and   READ PRESLI'S FACEBOOK INFO

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Friday, February 17, 2012
News Article

(7-18-2008) Insurance provider Aetna will cover a Florida woman's brain surgery after the intervention of a "FOX & Friends" contributor. Caitlin White, 19, of Bartow, Fla., suffers from a debilitating brain disorder that could kill her. She was scheduled for surgery when her insurance carrier, Aetna, canceled the family's coverage just minutes before she was scheduled to go under the knife.

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Friday, February 17, 2012
News Article

But after hearing her story, FOX News legal analyst Peter Johnson Jr. contacted Florida Gov. Charlie Crist's office, which was able in turn to reach Aetna through the state's Office of Citizen's Services. Crist's staff convinced the carrier to cover the surgery and give White 90 days of hospital service thereafter. "We didn't know what to do," her mother, Sheila Jackson, told "FOX & Friends" on Friday. "Our hands were tied."

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Friday, February 17, 2012
News Article

White suffers from Chiari malformation, a brain condition that causes excruciating headaches and fainting spells and can, without treatment, eventually lead to the destruction of motor skills and memory. White will now have the $113,000 surgery on Monday. "Oh, it's wonderful," White told FOX. Her mother was also elated. "It’s incredible," Jackson said. "We’ve been on such a rollercoaster and to get such incredible, wonderful news and then to find out how it came about, it’s just better."

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Thursday, February 16, 2012
News Article

A woman in Virginia talks about the frustrating journey that she had to deal with before finally being diagnosed with Chiari.

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Wednesday, February 15, 2012
News Article

Jonah Huelhorst, 12, and his sister Hannah, 10, both have Chiari and each had surgery at Rush University Medical Center in Chicago, IL. Now both are giving back, as they helped coordinate a toy drive taking place this week at Bentley School. READ ARTICLE

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Wednesday, February 15, 2012
News Article

Jess Connor is only 30 years old, but Chiari forces her to use a walker on some of her sickest days. “A lot of doctors in Maine don’t know what Chiari malformation is,” Connor said. “They’ve never heard of it, even though it’s about as common as multiple sclerosis.” The article does make a mistake when it says "Experts estimate that roughly 1 in 250,000 people has the disorder." One in 1,000 people have Chiari. READ FULL ARTICLE

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Monday, February 13, 2012
News Article

He thought he was having headaches. But for teenager Brett Foster, those headaches didn't go away; they got worse and more frequent — up to three or four per day — and then, about four months ago, they got debilitating.

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Friday, February 10, 2012
News Article

MEDICAL ARTICLE

An excellent and easy-to-understand overview of surgery for Chiari by the Southeastern Neurological and Spine Institute in Greenville, SC. Recommended for everyone, as it doesn't contain any images that some might find disturbing.

READ AND VIEW IT HERE

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