Articles

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Thursday, May 29, 2014
News Article

By PETE DAL BELLO

EDITOR'S NOTE: This is the sixth column in a series called "On the Road (2014)" and it follows International Chiari Association (ICA) Founder/President Pete Dal Bello's appointments and medical tests for Chiari. The occasional posts will be written in a diary-like format and he will also provide helpful tips.

I saw my dentist today so we will look at what a Chiarian needs to be bring with them when they go to their dental appointment. 

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Wednesday, May 28, 2014
News Article

Fourteen-year-old Hana Ferguson is a bright, creative and talented teen who hasn't let Chiari stand in her way. After successful surgery, a grateful Hana has paid it forward by helping others at Beaumont Children's Hospital.

In January, the young pediatric neurosurgery patient celebrated her birthday by asking friends to bring a donation for the Beaumont Chiari Program and pediatric neurology patients in lieu of gifts.

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Wednesday, May 28, 2014
News Article

Was your Chiari found after an accident (car accident, skiing accident, etc.)?

To ANSWER, please visit the ICA's Facebook page by CLICKING HERE.

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Wednesday, May 28, 2014
News Article

The 3rd Annual International Chiari Walk will take place on Saturday, September 6, and the International Chiari Association (ICA) hopes that everybody participates. Everyone is encouraged to WEAR PURPLE, the color for Chiari Awareness.

In the past, 12 count

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Wednesday, May 28, 2014
News Article

Chiari

You Do Not Understand!


From the outside,
It seems like I am Healthy,
From the outside,
It seems like I am lazy,
From the outside,
It seems like I am constantly tired,
From the outside,
It seems like I am detached, 
From the outside,
It seems like I complain too much, 
From the outside,
It seems like I just do not care,
From the outside,
It seems like I drink too much,

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Tuesday, May 27, 2014
News Article

Do you have a fundraiser to help a Chiarian with his/her medical expenses? The ICA would be happy to help by mentioning the event on our Facebook page.

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Monday, May 26, 2014
News Article

Do you or someone you know have a Chiari-related medical appointment, test, surgery, etc., this week? We are putting together our weekly "Well Wishes" List. Please include first and last name, as well as age (if under 18). Post an appointment, etc., for this week on our Facebook page. PLEASE CLICK HERE FOR MORE INFORMATION.

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Monday, May 26, 2014
News Article

The International Chiari Association (ICA) is pleased to announce that Dr. Catherine A. Mazzola has been added as a Medical Advisor. 

Mazzola is the Director of the Pediatric Neurological Surgery and Craniofacial Center at the New Jersey Pediatric Neuroscience Institute. The institute has locations in Morristown, New Jersey and Hackensack, New Jersey. 

"We are excited to have Dr. Mazzola on our team," said ICA Founder/President Pete Dal Bello. "She treats children and adults with Chiari and has done Chiari Research."

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Monday, May 26, 2014
News Article

Dr. Ben Carson, a retired pediatric neurosurgeon who performed decompression surgeries on children, has had people wanting him to run for president of the United States since last year. 

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Friday, May 23, 2014
News Article

While most high school seniors are in school with their friends, Benjamin Crump is once again hospitalized and has lost the use of his left leg. 

Crump originally was sent to Golisano Children's Hospital at Upstate Medical University, Syracuse, just before Thanksgiving. He was diagnosed with Chiari. Crump has also been diagnosed with syringomyelia and basilar invagination. 

The 17-year-old is a senior at Carthage High School in Carthage, New York.

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