Articles

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Monday, June 23, 2014
News Article

Do you or someone you know have a Chiari-related medical appointment, test, surgery, etc., this week? We are putting together our weekly "Well Wishes" List. Please include first and last name, as well as age (if under 18). Post an appointment, etc., for this week on our Facebook page. PLEASE CLICK HERE FOR MORE INFORMATION.

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Monday, June 23, 2014
News Article

The International Chiari Association (ICA) is pleased to announce that Kim Okeson of The Pampered Chef is hosting an online fundraiser and 10% of the sales will go to our all-volunteer nonprofit organization. 

Okeson, who is a consultant with the company, wants to also raise Chiari Awareness as her 18-month-old son, Jonathan, has this serious neurological disorder. 

"I am a mom to two wonderful boys," Okeson said. "My outlook on life changed in October of 2013 when my youngest was diagnosed with Chiari."

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Monday, June 23, 2014
News Article

If any of our readers will be at Good Samaritan Hospital in Los Angeles on Friday, June 27, and would like ICA Founder/President Pete Dal Bello to visit you, please send him an e-mail at pete@ChiariAssociation.org . Please put "Hospital Visit" in the subject line. 

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Monday, June 23, 2014
News Article

Amy Mundy is a registered nurse with Chiari in Odessa, Texas who is scheduled to have decompression surgery this week. She is used to giving to others, but now her friends are giving back to her. 

"It’s hard, it's been hard for me to accept the fact that people, there's genuine good people in the world that want to help us", Mundy said.

Old School Wrestling had a professional wrestling event benefit for Mundy on Saturday. All of the proceeds went to help Mundy and her family with travel to the hospital and medical expenses. 

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Monday, June 23, 2014
News Article

Many Chiarians have gone out of state to have decompression surgery. 

Michelle Welsh is taking that route, but her surgery is also part of "A Prospective Natural History Study of Patients with Syringomyelia."  

Welsh, a 34-year-old woman from Oklahoma City, Oklahoma, will be having decompression surgery on Tuesday at The National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland. Dr. John D. Heiss, who is the principal investigator of the study, will be performing the surgery. 

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Friday, June 20, 2014
News Article

The International Chiari Association (ICA) is pleased to announce that our Facebook page now has more than 4,500 "Likes." 

"Smart people like the ICA," said ICA Founder/President Pete Dal Bello. "We appreciate everyone's continued support. Our Facebook page provides Chiari-related news and information from Monday through Friday. This includes reporting on Chiari Research every Friday. It is also a positive, family-friendly and helpful environment."

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Friday, June 20, 2014
News Article

By PETE DAL BELLO 

Medical appointments are often brief and expensive. This is why preparation is so important and I have written this article to increase your chances of getting the most out of your time at the doctor's office. 

The route Chiari patients usually take is to go from their primary-care physician to a neurologist to a neurosurgeon. Let's discuss visiting a neurosurgeon, who is located out of town, so all of your bases will be covered. 

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Friday, June 20, 2014
News Article

The International Chiari Association (ICA) is pleased to announce that Kim Okeson of The Pampered Chef is hosting an online fundraiser and 10% of the sales will go to our all-volunteer nonprofit organization. 

Okeson, who is a consultant with the company, wants to also raise Chiari Awareness as her 18-month-old son, Jonathan, has this serious neurological disorder. 

"I am a mom to two wonderful boys," Okeson said. "My outlook on life changed in October of 2013 when my youngest was diagnosed with Chiari."

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Friday, June 20, 2014
News Article

Dear readers,

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Thursday, June 19, 2014
News Article

The International Chiari Association (ICA) is pleased to announce that the De Witte Mortgage Investors Fund (located at 8 E. Figueroa St., Ste. 250 in Santa Barbara, California) has agreed to become a $500 Courage the Bear Sponsor for the 3rd Annual Chiari Awareness Celebration. This is the third year that De Witte has been a sponsor for this family-friendly event, which will take place this year from 11 a.m. to 4 p.m. on Sept. 6 at Tucker's Grove in Santa Barbara.

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