Articles

Friday, May 17, 2013
On the Road (2013) - Part 2
News Article

ICA Founder/President Pete Dal Bello has already bought his train ticket to Los Angeles for his May 23 follow-up appointment with his neurosurgeon. 

To read his article "Preparing for Your Appointment," please click on the following link:

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Friday, May 17, 2013
SOME CHIARIANS ALSO HAVE ... Syringomyelia
News Article

Every Friday, the ICA Newsroom posts an article to a series called "SOME CHIARIANS ALSO HAVE ... " Today, we look at syringomyelia:

SYRINGOMYELIA (sear-IN-go-my-EEL-ya) 

In 20-30% of the cases of those diagnosed with Chiari I malformation, the sufferer also has syringomyelia. This happens when a fluid-filled cyst forms within the spinal cord. Syringomyelia may also occur as a complication of spine trauma, meningitis, hemorrhage, a tumor or arachnoiditis. 

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Friday, May 17, 2013
Chance Encounter Leads to Diagnosis After Years of Unanswered Questions
News Article

Paul and Jennifer Silva had been struggling with multiple doctor visits, tests and unanswered questions about their nine-year-old daughter Ella. It wasn’t until a chance encounter that lead them to finding what and who they were looking for.

The “who” they found was Dr. Holly Gilmer, medical director of pediatric neurosurgery at Beaumont Children’s Hospital, and the “what” was Chiari malformation.

To read MORE, please CLICK HERE. 

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Friday, May 17, 2013
ICA ARCADE: Pirate Gem
News Article

Have you visited the ICA ARCADE? There are 12 fun games to play for FREE.

Today, we look at Pirate Gem. To play, please CLICK HERE.

CLICK HERE TO VISIT THE ICA ARCADE

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Friday, May 17, 2013
From the President's Desk: May 17, 2013
News Article

Dear readers,

It has been another busy and successful week for the International Chiari Association (ICA).

It started with the unveiling of the ICA Chiari Awareness Bracelets. These purple bracelets feature ICA Mascot Courage the Bear. They are made of soft, durable neoprene material for long-lasting comfort.

The bracelets are the first of many Chiari-friendly items that will become available this year. Some of them will feature Courage, who is a favorite of all ages.

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Thursday, May 16, 2013
Next Week's "Well Wishes"
News Article

Do you or someone you know have a Chiari-related medical appointment, test, surgery, etc., next week? We are putting together our weekly "Well Wishes" List for Monday. Please include first and last name, as well as age (if under 18). Post an appointment, etc., for next week on our Facebook page. PLEASE CLICK HERE FOR MORE INFORMATION.

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Thursday, May 16, 2013
ICA SUPPORT CHAPTERS UPDATE
News Article

The International Chiari Association (ICA) has added an eSupport Chapter in Canada and it will be run by Janet Hussey. 

An eChapter allows people that live far apart to communicate with each other via e-mail.

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Wednesday, May 15, 2013
CHIARI AWARENESS CELEBRATION
News Article

The International Chiari Association (ICA) is pleased to announce that their 2nd Annual Chiari Awareness Celebration will take place from 11 a.m. to 4 p.m. on Saturday, Sept.

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Tuesday, May 14, 2013
Fundraisers for Chiarians
News Article

Do you have a fundraiser to help a Chiarian with his/her medical expenses?

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Friday, May 10, 2013
Girl's Chiari Story Deserves to Be Heard
News Article

Most people take their hearing for granted, but you'll never find Claire Maloney in that group. The 14-year-old girl from Chicago has Chiari and her particular battle is the second reported case in the world.

At the age of four, Claire learned that she was born with mild to moderate hearing loss. Doctors didn't know what was causing this, but Claire would have to see an audiologist every eight months to make sure that she didn't lose any more of her hearing.

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