News Article
Friday, May 17, 2013
On the Road (2013) - Part 2

ICA Founder/President Pete Dal Bello has already bought his train ticket to Los Angeles for his May 23 follow-up appointment with his neurosurgeon. 

To read his article "Preparing for Your Appointment," please click on the following link:

Read the full article »

News Article
Friday, May 17, 2013
SOME CHIARIANS ALSO HAVE ... Syringomyelia

Every Friday, the ICA Newsroom posts an article to a series called "SOME CHIARIANS ALSO HAVE ... " Today, we look at syringomyelia:

SYRINGOMYELIA (sear-IN-go-my-EEL-ya) 

In 20-30% of the cases of those diagnosed with Chiari I malformation, the sufferer also has syringomyelia. This happens when a fluid-filled cyst forms within the spinal cord. Syringomyelia may also occur as a complication of spine trauma, meningitis, hemorrhage, a tumor or arachnoiditis. 

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Medical Article
Friday, May 17, 2013
RECENT CHIARI STUDY: Fibrin Sealant Augmentation With Autologous Pericranium For Duraplasty After Suboccipital Decompression

This study was published on Jan. 18 and comes from a team effort of Harvard Medical School and UC San Diego Medical Center. Researchers evaluate the use of fibrin sealant augmentation in combination with locally harvested autologous pericranium for duraplasty in adult Chiari I decompression surgeries. CLICK HERE TO READ MORE.

News Article
Friday, May 17, 2013
Chance Encounter Leads to Diagnosis After Years of Unanswered Questions

Paul and Jennifer Silva had been struggling with multiple doctor visits, tests and unanswered questions about their nine-year-old daughter Ella. It wasn’t until a chance encounter that lead them to finding what and who they were looking for.

The “who” they found was Dr. Holly Gilmer, medical director of pediatric neurosurgery at Beaumont Children’s Hospital, and the “what” was Chiari malformation.

To read MORE, please CLICK HERE. 

News Article
Friday, May 17, 2013
ICA ARCADE: Pirate Gem

Have you visited the ICA ARCADE? There are 12 fun games to play for FREE.

Today, we look at Pirate Gem. To play, please CLICK HERE.

CLICK HERE TO VISIT THE ICA ARCADE

News Article
Friday, May 17, 2013
From the President's Desk: May 17, 2013

Dear readers,

It has been another busy and successful week for the International Chiari Association (ICA).

It started with the unveiling of the ICA Chiari Awareness Bracelets. These purple bracelets feature ICA Mascot Courage the Bear. They are made of soft, durable neoprene material for long-lasting comfort.

The bracelets are the first of many Chiari-friendly items that will become available this year. Some of them will feature Courage, who is a favorite of all ages.

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News Article
Thursday, May 16, 2013
Next Week's "Well Wishes"

Do you or someone you know have a Chiari-related medical appointment, test, surgery, etc., next week? We are putting together our weekly "Well Wishes" List for Monday. Please include first and last name, as well as age (if under 18). Post an appointment, etc., for next week on our Facebook page. PLEASE CLICK HERE FOR MORE INFORMATION.

News Article
Thursday, May 16, 2013
ICA SUPPORT CHAPTERS UPDATE

The International Chiari Association (ICA) has added an eSupport Chapter in Canada and it will be run by Janet Hussey. 

An eChapter allows people that live far apart to communicate with each other via e-mail.

Read the full article »

News Article
Wednesday, May 15, 2013
CHIARI AWARENESS CELEBRATION

The International Chiari Association (ICA) is pleased to announce that their 2nd Annual Chiari Awareness Celebration will take place from 11 a.m. to 4 p.m. on Saturday, Sept.

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News Article
Tuesday, May 14, 2013
Fundraisers for Chiarians

Do you have a fundraiser to help a Chiarian with his/her medical expenses?

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